On World TB Day (March 24) I
attended a march sponsored by TAC and a handful of other South African NGOs. We
were marching to demand better access to treatment for people with TB
(tuberculosis), including multi-drug resistant TB (MDR) and extreme resistant
TB (XDR). Before coming to TAC I never really understood what TB was, because
it’s not something people really worry about in the US. I knew that before
travelling abroad I was required to get a TB test done, but other than that I
had never given the disease a second thought. However, last month I attended a
meeting with TAC and MSF where I learned about TB from a medical perspective,
and yesterday I learned more about it from a global health perspective. I was
shocked to realize that TB is the leading cause of death in South Africa, with
thousands dying every year. It’s also a completely preventable and treatable
disease. At the march, which was attended by several thousand people, we stood
in front of the parliament and heard speeches from leaders of various
organizations as well as testimony from TB survivors. I was shocked when one of
the leaders declared that “If our demands for better treatment for poor people
are not met, we know that most of us standing here will die.” Before, I had
really felt a part of the group, despite the fact that I was one of about five
white people in the whole march. I had still been singing and dancing and
holding my sign with everyone else, and I could almost pretend that I was a
part of this community. But when the speaker said that I was struck by how
different my life really is from the people who were standing next to me. This
was a disease I had barely even heard of at home, and here was someone
addressing this huge crowd and matter-of-factly telling them that this was
going to be the cause of their deaths. That was when I realized the
reason I was standing there, aside from the fact that TAC had brought me along.
It’s fine to be told about inequality of healthcare services and how the rich
always get better treatment than the poor, but I never really absorbed it until
I understood that my luck of being born into privilege in the US had completely
shielded me from even having to know the name of this disease which poses a
constant struggle to people in the townships and across the world every day.
After someone from the government signed our memorandum and the crowd began to
disperse, I asked someone with me if they thought our march was going to make a
difference. He said it was a good question and that he really didn’t know. It
made me think about how hard it must be to spend every day working for these
goals, planning events, and not knowing if what you do will make an immediate
difference. However, it gives me hope that people still fight for their right
to healthcare and persevere instead of giving up.
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